Special Seminars

Richards T, Montori VM, Godlee F, Lapsley P, Paul D. Let the patient revolution begin. BMJ. 2013;346:f2614.

CIHR website pages describing SPOR

Frank L, Basch E, Selby JV, Patient-Centered Outcomes Research Institute. The PCORI perspective on patient-centered outcomes research. JAMA. 2014;312(15):1513-4.

Madden M. Beware Zombies and Unicorns: Toward Critical Patient and Public Involvement in Health Research in a Neoliberal Context. Frontiers in Sociology 2017;2(June):1-6.

Ives J, Damery S, Redwood S. PPI, paradoxes and Plato: who's sailing the ship? J Med Ethics. 2013;39(3):181-5.

[Video] Everyone Has a Story

Pauly, B., Urbanoski, K., Hartney, E., Shahram, S., Marcellus, L., Wallace, B., ... & Hancock, T. (2019). What is missing from “Patient-Oriented Research?” A view from public health systems and services. Healthcare Policy, 15(2), 10.

[eLearning Module] Patient Partner Engagement in Health Research

CIHR website Strategy for Patient-Oriented Research - Patient Engagement Framework

Manafo E, Petermann L, Mason-Lai P, Vandall-Walker, V. Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research. Health Res Policy Syst. 2018;16(1):24.

Patient Engagement Assessment Tools (choose one of the following): IAP2 Spectrum, SCPOR Patient-Oriented Research Level of Engagement Tool (PORLET), and Indigenous Research Level of Engagement (IRLET)

Hamilton CB, Hoens AM, Backman CL, McKinnon AM, McQuitty S, English K, et al. An empirically based conceptual framework for fostering meaningful patient engagement in research. Health Expect. 2018;21(1):396-406.

Wicks P, Richards T, Denegri S, Godlee F. Patients' roles and rights in research. BMJ. 2018;362:k3193.

[Podcast] PEP Talks: Episode 4 - Measuring Patient Experience with Kyle Kemp

AbSPORU Research Services

Allemang, B., Sitter, K., & Dimitropoulos, G. (2022). Pragmatism as a paradigm for patient‐oriented research. Health Expectations, 25(1), 38-47.

Rolfe, D. E., Ramsden, V. R., Banner, D., & Graham, I. D. (2018). Using qualitative health research methods to improve patient and public involvement and engagement in research. Research involvement and engagement, 4(1), 1-8.

Incorporating Gender Variables into Clinical Research

Knowledge Translation. CIHR website. 2016.

Knowledge Synthesis. CIHR website. 2016.

Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, et al. Lost in knowledge translation: time for a map? J Contin Educ Health Prof. 2006;26(1):13-24.

Introduction to Patient Engagement & Integrated Knowledge Translation

Introduction to Knowledge Synthesis

Knowledge Synthesis as a Knowledge Translation Tool

[Video] Learning Health Systems: Rapidly Improving Patient Care & Workplace Satisfaction at a Lower Cost

[Podcast] PEP Talks: Episode 1 - Learning Health Systems with Dr. Charles Friedman

Learning Health Systems in British Columbia: Focus & Finish – An Action Plan

[Video] EDI in Research: What You Should Know

[Video] Diversity in Research Teams

[Video] Shifting the Lens on Girls' and Women's Health: Interdisciplinary Approaches & New Opportunities for Researcher Capacity Development

[eLearning Modules] CIHR: SGBA+ & GBA+ (Status of Women, Govt of Canada)

Best Practices in Equity, Diversity and Inclusion in Research

Manohar, N., Liamputtong, P., Bhole, S., & Arora, A. (2017). Researcher positionality in cross-cultural and sensitive research. Handbook of research methods in health social sciences, 1-15.

Hankivsky, O., Reid, C., Cormier, R., Varcoe, C., Clark, N., Benoit, C., & Brotman, S. (2010). Exploring the promises of intersectionality for advancing women's health research. International journal for equity in health, 9(1), 1-15.

Equity, diversity and inclusion considerations at each stage of the research process

[Video] Intersectionality and health research

Abrams, J. A., Tabaac, A., Jung, S., & Else-Quest, N. M. (2020). Considerations for employing intersectionality in qualitative health research. Social Science & Medicine, 258, 113138.

Kahn, J. M., Gray, D. M., Oliveri, J. M., Washington, C. M., DeGraffinreid, C. R., & Paskett, E. D. (2022). Strategies to improve diversity, equity, and inclusion in clinical trials. Cancer, 128(2), 216-221.

Bolen, S., Tilburt, J., Baffi, C., Gary, T. L., Powe, N., Howerton, M., ... & Bass, E. (2006). Defining “success” in recruitment of underrepresented populations to cancer clinical trials: moving toward a more consistent approach. Cancer: Interdisciplinary International Journal of the American Cancer Society, 106(6), 1197-1204.

Jacobson, D., & Mustafa, N. (2019). Social identity map: A reflexivity tool for practicing explicit positionality in critical qualitative research. International Journal of Qualitative Methods, 18,

[eLearning Module] Introduction to Pragmatic Clinical Trials OR [Video] Introduction to Pragmatic Clinical Trials

Ford I, Norrie J. Pragmatic Trials. N Engl J Med. 2016;375(5):454-63.

Loudon K, Treweek S, Sullivan F, Donnan P, Thorpe KE, Zwarenstein M. The PRECIS-2 tool: designing trials that are fit for purpose. BMJ. 2015;350:h2147.

Aubin, D, Hebert, M, Eurich, D. The importance of measuring the impact of patient-oriented research. CMAJ 2019;191(3):E860-E864.

Esmail L, Moore E, Rein A. Evaluating patient and stakeholder engagement in research: moving from theory to practice. J Comp Eff Res. 2015;4(2):133-45.

Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. Res Involv Engagem. 2017;3:13.

[Video] Sustaining Long-term Impact in Patient-oriented Research

Hamilton CB, Hoens AM, Backman CL, et al. An empirically based conceptual framework for fostering meaningful patient engagement in research. Health Expect 2018;21:396–406.

Carroll SL, Embuldeniya G, Abelson J, McGillion M, Berkesse A, Healey JS. Questioning patient engagement: research scientists' perceptions of the challenges of patient engagement in a cardiovascular research network. Patient Prefer Adherence. 2017;11:1573-83.