Societal and Medical Issues in Human Genetics

(3 Credit Hours) · Undergraduate

It has been 20+ years since the first draft sequence of the entire human genome was published, spurring development of genetic technologies that were previously impossible, such as CRISPR genome editing. These technologies carry potential to identify, treat, or even prevent genetic conditions; at the same time, they often rely on assumptions that genes determine one’s fate and are shaping contemporary ideals of health, wellness, and disability. This course will examine how genetics and genetic technologies raise a host of complicated ethical questions, such as concerns about “new” forms of eugenics and genetic determinism, the ownership and commodification of genetic material, the ethics of genetics research in marginalized communities, legislative efforts to prevent genetic discrimination, and more. We will use a case study approach, pairing examinations of the biological and technical bases of specific genetic technologies with bioethical analysis to consider costs and benefits from a variety of stakeholder perspectives. This will entail engagement with perspectives from the history of science, genetics, bioethics, genetic counseling, etc. to explore complicated questions about the relationships between genetics, research, medicine, and society.